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Multiracial adults needed in DC area and Atlanta for important health study
NIH STUDY - Identity, Ancestry and Genetics: Patients' Perspectives
Sponsored by the Social and Behavioral Research Branch of the National Human Genome Research Institute (NHGRI) at the National Institutes of Health (NIH).
Summary: This study will collect the opinions, understandings and personal health care experiences of multiracial persons of African and European ancestry. Understanding multiracial patients' beliefs and experiences about their race, ethnicity, ancestral origin and the genetic components of diseases can provide important data for developing ways to communicate how human genetic variation is related to self-identified race and ethnicity.
Requirements: Persons 21 years of age or older in the Atlanta, Georgia, or Washington, D.C. metropolitan areas who are from a multiracial background, with one parent of African ancestry and one parent of European ancestry, and have used health care services in the last 2 years may be eligible for this study. Each participant will complete a 2 hour one-on-one interview to gather information about their background, family ancestry, self-identity, race and ethnicity, health care interactions and understandings of genetics and health. Each participant will also complete a short questionnaire before and after the interview.
Contact: To participate in one of the interviews or learn more about the study please contact a member of our project team, Bola Odunlami, Project Coordinator, Telephone: (301) 451-7653, Email: aodunlam@mail.nih.gov or Vence L. Bonham, Principal Investigator, Telephone: (301) 594-3973, Email: bonhamv@mail.nih.gov.
The Health Status of Multiracial Americans Fact Sheet
FACT:
There is a total lack of information about health risks and trends in
public health statistics for the multiracial population.
FACT:
In the United States a person who is multiracial can be easily
misclassified as one race at birth and another at death.
FACT:
The non-inclusion of multiracial people in clinical trials by every
pharmaceutical manufacturer in the U.S. puts multiracial people at risk
for drug overdosing and under-dosing every day.
FACT:
The United States Food and Drug Administration has not acted on the
critical need for the inclusion of multiracial people in clinical trials.
FACT:
There is a shortage of bone marrow donors for the multiracial
population.
FACT:
The U.S. Department of Health and Human Services can tell us NOTHING
about health risks or trends in public health statistics for multiracial
children and adults, although they have studied every other racial and
ethnic group.
FACT:
The health care system in the United States has rendered the
multiracial population "invisible."
FACT:
We desperately need accurate classification for multiracial children
and adults.
FACT:
Multiracial people deserve an equal chance for medical care in this
country.
Special Medical Concerns
Without accurate racial designations, multiracial children are at risk for improper medical screening for diseases that affect certain racial groups. Another area of concern is bone marrow transplantation for patients with leukemia and other blood diseases, where the best chance of a match is within the same genetic pool of potential donors.
Project RACE actively helps multiracial people in need of bone marrrow donation. We urge EVERYONE to have a simple blood test to determine your compatibility as a donor. For more information, either visit the National Donor Marrow Program or email us at the address below.
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